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Help: Leukemia
shizi - 4-28-2009 at 01:12 PM

My girlfriend of 4 years was recently diagnosed with leukemia
I have done some research on the topic and i understand how it works
i have been on this site for years so i know the majority of people here are mature and well educated which is why i am reaching out to this community
does anyone have any personal experiences with friends or relatives that are dealing with or have dealt with this cancer and is willing to share it with me?
i love her very much and im devastated right now that i am unable to help her because we have a long distance relationship.
i have no idea what to do :(


NEXUS - 4-28-2009 at 01:33 PM

Does she have a chance of getting a bone marrow transplant?


Nolyrk - 4-28-2009 at 02:20 PM

As I know, bone marrow transplant is the only solution as for today's medical knowledge, and finding the right marrow sample could be a long process. Usually there is a bigger chance from family members, if not, you can consult your country's blood bank (or marrow bank) for information.
Sorry I can't provide much information since this is all I know on the matter, but I wish your girlfriend and you good luck, and hope she gets healthy as soon as possible, please be strong, it's a critical time and your girlfriend will need you very much now.
GOOD LUCK and may God bless you both!


lbrother28 - 4-28-2009 at 02:23 PM

Sorry to hear that, I feel your pain man. Unfortunately, I never had the experience of knowing someone with that disease. But I think my mom knows someone that works in an organization that help people look for bone marrow transplant. If you need that I guess I can ask my mom about it.


QQ - 4-28-2009 at 02:49 PM

Sorry to hear about this
hopefully ur gf can find the right bone marrow
stay strong, im sure if ur gf sees you all sad, she'll be too and she'll have a harder time getting through


zeroeightfive - 4-28-2009 at 02:49 PM

first of all, my condolences. hang in there, be there for her and keep her mind off of more depressing matters. i dont have experiences with leukemia firsthand tho =


atomicduelist - 4-28-2009 at 03:01 PM

ouch that really sucks honestly...my uncle was diagnosed a year or so ago.

The whhole family went to be tested to see if we had the right bone marrow...usually it's a brother or sister...in my uncles case it was his brother.

Although there was the transplant my uncle is still having lots of different problems...probably coz he is super stubborn and won't listen...

But yea...bone marrow is probably the only way


Jokaiz - 4-28-2009 at 03:25 PM

sorry to hear about this.. dude. hope everything turns out better! be strong


shizi - 4-28-2009 at 03:54 PM

thanks guys
trying my best here :(


Nofrozic - 4-28-2009 at 04:06 PM

Hope you find a bone marrow that fits ur gf.


Nofrozic - 4-28-2009 at 04:06 PM

Hope you find a bone marrow that fits ur gf.


itz91 - 4-28-2009 at 04:17 PM

Do you know the type of leukemia? Certain ones, like chronic myeloid leukemia can be treated (although not cured) with drugs (imatinib) that target the factor that stimulate cancer growth.

But no matter what, give her all the support you can, best of luck.


skar3000 - 4-28-2009 at 06:34 PM

My support goes out to both of you, good luck!


e.zee - 4-28-2009 at 07:49 PM

Just always hope for the best and stay strong, both for her and yourself.


dimensionless99 - 4-28-2009 at 08:51 PM

First of all, best of hope for her and my support to both of you..

Second.. lots of false info going around in this topic. Bone marrow transplant is not the only way, and in fact may not be the primary treatment for this, depending on the type of leukemia. It will most likely be chemotherapy. You can probably find a lot of info online, but make sure you look up the right kind of leukemia, cause there's different kinds, myelogenous, lymphocytic, chronic, accute... and the prognosis and treatments are very different (also very different for children vs adults).

Good news is, with the latest advancements in treatments, complete remission is highly foreseeable.

I have no direct experience, but I would say the first thing to do is to familiarize yourself with the cancer so you can rationalize the situation, and you seem to be doing just that. The more you know, the more you can prepare yourself for what's ahead (the treatments), and the better you can support her through this.


MonkeySlayer - 4-28-2009 at 08:55 PM

hey man best of luck to your gf.

my sister had a coworker who was disagnosed with leukemia only 4 or 5 weeks ago. she went to the hospital and they gave her a blood transfusion to slow it down temporarily, but sadly she passed away in 2 weeks. we were all surprised by how fast the leukemia acted, i hope that your gf doesn't have the same kind.

a little depressing i know but its leukemia related. best wishes.


bujar - 4-28-2009 at 09:23 PM

Sorry to hear that man. I really hope things turn out good for you guys.


brandqtips - 4-28-2009 at 09:39 PM

I suggest you speak with a real doctor. We can only give you "suggestions". Many people are talking about bone marrow transplants. However, complications can occur afterwards even with the transplant. How old is your gf? From the cancer classes I have taken, leukemia at a younger age has a higher chance of survival, while at a higher age, chances get slimmer. Speak with your doctor. I know this is going to be rough times, but hang in there man. My grandfather recently had a major stroke on Friday. Family is going on a roller coaster, but hopefully he'll stay strong and push on. Take care


gancho - 4-28-2009 at 10:39 PM

you can try doing bone marrow drives to increase the possible donors. my friends helped set up http://projectmichelle.com/ in a few weeks in houston we increased the possible donor count by almost a thousand. it's hard cause i think asians make up the smallest group of possible donors so, maybe this helps and you can find one for your gf. we're all here for you.


QQ - 4-28-2009 at 11:14 PM

Quote:
Originally posted by MonkeySlayer
hey man best of luck to your gf.

my sister had a coworker who was disagnosed with leukemia only 4 or 5 weeks ago. she went to the hospital and they gave her a blood transfusion to slow it down temporarily, but sadly she passed away in 2 weeks. we were all surprised by how fast the leukemia acted, i hope that your gf doesn't have the same kind.

a little depressing i know but its leukemia related. best wishes.


on a depressing note

remember that girl who needed bone marrow transplant? the one that is chinese and we've seen her in the news all over Toronto (age around 20-25 ish?)

the other day, 2 days ago, i read in the paper, i saw that she passed away after battling it for a while.. apparently, some of my friends went to the same church as her and was promoting by asking ppl to get tested... however, she couldnt survive...

of course im sure she has a doctor taking care of her atm, but ur support is as important..
if possible (since ur longD) try to get to see her i recommend, ur presence will just all of her (and her cancer cells) feel better for sure =)


Kurogashi - 4-28-2009 at 11:19 PM

Bone marrow transplant, hmm.. good luck on that. It's a very difficult and a lengthy process. There are also many people in line and they treat the "worst" patient first. Just pray to god that someone won't be ahead of you.

Anyways like all other cancers, if there is a will, there is a way. A good way to start is to inform yourself. So when something critical does occurs, you won't be left clueless.

This also reminds me of the Haru-Haru video.. don't ask why, but I hope your story doesn't end like the MV's.

Don't stress over it too much because chances are high that she'll break through. There are no cure yet, but there are many types of treatments, so best of luck.

And don't let her see your personality change because of her cancer. The mind can be very powerful when it comes to curing stress, diseases, etc, OR the other way around.


Edwun - 4-28-2009 at 11:22 PM

yeah, as QQ said, think you should try and be by her side if you really love her. I've had a similar experience with my g/f. And your physical presence there is just as important and helpful as your spiritual presence.

It's going to be very, VERY tough, but wish you and your girlfriend the best.

You might be drained spiritually because it's really hard, but have faith.


shizi - 4-28-2009 at 11:33 PM

yeah.. this is more stressful than finals week
at first she wanted to break up because she said she doesn't want to continue to hurt me.
better now than later etc
once again thanks everyone :D didnt know where to turn to for support
shes 21 btw


tickleme - 4-29-2009 at 12:30 PM

What type of leukemia does she have?

http://en.wikipedia.org/wiki/Leukemia


sobakchi - 4-29-2009 at 05:13 PM

an immediate family of mine
has a disease that cannot be cured
even with modern day medicine

extremely expensive medication not covered by insurance
will prolong but will not "help" the condition


Yang - 5-3-2009 at 05:27 PM

21!? I'm so sorry man.